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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Posts Tagged "drug" By TaraMarshall (4) Posts by anyone

Autoimmune Disorders and Rare
Feb 11, 2019Feb 2019

Posted by Lutherzme
Once free, drug for rare disease now being sold for $375K a year.
1 comment
Autoimmune Disorders and Rare
Nov 12, 2018Nov 2018

Posted by Dingodog
My wife was misdiagnosed with MS a few years back. She was 60, asymptomatic but had a plaque pattern on consistant with, but not exclusive to MS. They started he on an MS drug right away. I later learned the there is no medical therapy that will ...
0 comments
Autoimmune Disorders and Rare
Jun 25, 2018Jun 2018

Posted by BookDeath
Just returned from seeing my new neuro-nurse practitioner! (A female, btw.) She was like night and day from the previous neuro-jerk! We're titrating down from this horrid AED and discussed what is acceptable in terms of seizures. ALL AEDS have ...
2 comments
Autoimmune Disorders and Rare
Mar 28, 2018Mar 2018

Posted by LadyAlyxandrea
I am just so pissed off with this war on opioids. It drives me nuts. My pain doctor is now being squeezed into getting me off pain meds, and with very little alternative aid. It is not because he wants to either. It's because I'm 27 and have no ...
5 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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