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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Posts Tagged "sleep" By TaraMarshall (4) Posts by anyone

Autoimmune Disorders and Rare
Apr 15, 2019Apr 2019

Posted by LadyAlyxandrea
So doc cleaned out my incisions and reglued them shut. Apparently for whatever reason those two just don't want to heal shut and that's why they keep getting infected. She hopes the glue will urge them to shut but if they don't start closing by next ...
1 comment
Autoimmune Disorders and Rare
Apr 3, 2019Apr 2019

Posted by ponz111
I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move. If I lay down to try and sleep it sets in. And i will hit the bed very hard with my fist a few times which helps only a few seconds. ...
2 comments
Autoimmune Disorders and Rare
Mar 26, 2019Mar 2019

Posted by LadyAlyxandrea
You've heard of Angels in the Outfield Well get ready for Almonds in my Icecream Ffs I cannot get a break
1 comment
Autoimmune Disorders and Rare
Mar 25, 2019Mar 2019

Posted by LadyAlyxandrea
Managed to flip my sleep schedule back to normal, but now I'm constantly tired again and taking naps again. I think the infection is on the downward move, getting better, so maybe I'm just exhausted from fighting that and healing. oh and my new ...
1 comment
Autoimmune Disorders and Rare
Mar 17, 2019Mar 2019

Posted by LadyAlyxandrea
Today was pretty good. I slept 8 hours and managed to stay awake the whole day without a nap. I cleaned my wounds and took a real shower, washed my hair and everything. That was a little too gunho, alas, and I nearly fainted in the shower. But I'm ...
2 comments
Autoimmune Disorders and Rare
Mar 16, 2019Mar 2019

Posted by LadyAlyxandrea
Post op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out. Today was my moms birthday. I managed the hazardous trek up stairs to attend her birthday lunch. I ate a slice and a half of pizza...
1 comment
Autoimmune Disorders and Rare
Mar 14, 2019Mar 2019

Posted by LadyAlyxandrea
Day 2: helppppp The abdominal pain wouldn't be so bad, if it were not for EVERY MUSCLE IN MY BODY feeling pulled. Muscles I didnt know i had hurt. Goodness gracious. Yesterday was alright, i felt pretty decent, but today holy moly no thank you. ...
2 comments
Autoimmune Disorders and Rare
Feb 5, 2019Feb 2019

Posted by LadyAlyxandrea
I am SO livid. For a few weeks I've been having horrific facial flushing like ON FIRE feeling. I've been struggling with sleep. My angina came back for the first time since I was 18. My nerve pain is 40-60% worse than ever. And I found out today...
3 comments
Autoimmune Disorders and Rare
Jan 17, 2019Jan 2019

Posted by LadyAlyxandrea
I'm starting to get irritated again. Though maybe I'm over reacting a bit due to having been awake 30 hours and my pain is like 50% worse today than ever. I finally got answers to a few of my issues (i.e., dual brachial plexus injuries, severe ...
0 comments
Autoimmune Disorders and Rare
Jan 6, 2019Jan 2019

Posted by LadyAlyxandrea
I've managed to sleep on and off for about 15 hours today. I'm actually in an uncharacteristically large amount of pain from the trip. It concerns me. My last three trips to Kansas city didn't hurt this bad. But I'm also fighting off a ...
2 comments
Autoimmune Disorders and Rare
Dec 17, 2018Dec 2018

Posted by LadyAlyxandrea
Narcolepsy. Let me tell you out of ALL of the problems I have I think that one is the most inconvenient. Growing up I never understood just how powerful narcolepsy can be. I would complain about my mom always falling asleep "come on just get up and ...
1 comment
Autoimmune Disorders and Rare
Sep 19, 2018Sep 2018

Posted by LadyAlyxandrea
My pain is getting much worse. I've dropped out of taekwando because I just hurt too much now. Master says I can still participate the days I can and I don't have to do everything, I can sit out as much as I need, too. He's so kind and understanding ...
1 comment
Autoimmune Disorders and Rare
Aug 27, 2018Aug 2018

Posted by memorylikeasieve
Fuckin hell. Last night, while I was trying to sleep, my neck subluxed so badly that it made a loud, painful crack. No kind of pillow or arrangement of bedding seems to help keep my neck stable. >.<
4 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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