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Three years ago the way that people with autism are classified was changed. The diagnoses of autism, high functioning autism and Asperger's Syndrome all became ASD (Autism Spectrum Disorder) Levels 1-3. How do people feel about all being put in the same group? Has it made any difference to you? Do you care? Did you know that the terms had changed?

Brunnion 7 June 20
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1

I think there are those with Asperger's who really preferred carrying that as a primary diagnosis.

I think it provided a more specific diagnosis to the lay person in particular where anyone would go "Oh that". And have a notion of what was being discussed.

Simplifying the terms may have been a disservice - maybe they'll fix it in the next one.

And in the meantime folks can call themselves what they like - a lot of people kept the term Aspie. It's a far better descriptor IMHO.
I've got a nephew who is Aspie and that's still the way we discuss it among ourselves.

RavenCT Level 9 Mar 13, 2019
0

Didn't bother me in the slightest. It's simply a classification system. Interestingly, "normal" people are also on the scale, otherwise the system would not be valid. Think of it as classifying the reactivity of substances in liquid water. At one end there is ice, at the other end steam, which have to be classified as the limits. The most reactive temperature is in the 25 to 40 degrees centigrade (75 to 100F) range. This would represent the highest performing Asperger's people. Lower than that represents mild Asperger's. Ice, of course, is the dull, uninteresting mass of "normal" people.
Anyway, I continue to refer to myself as an "Asparagus". ??

Petter Level 9 Mar 13, 2019
1

I hate it. I think it just confuses the issue and slows progress and understanding by changing the lingo for no apparent reason. My daughter is very classically autistic and will never be independent. Putting her in the same umbrella as high functioning asperger people seems shady.

JazznBlues Level 8 June 20, 2018

@StilInterested Yep, comparing your cousin and granddaughter, it's easy to see why autism is called a spectrum, eh!

I suppose the thinking behind the change was that all people on the spectrum have neurons in their brains that are differently connected from neurotypical people. The hugely diverse ASD traits haven't been considered at all. Only the severity of disability has been classified into 3 levels.

2

My son was diagnosed three months after the change in classification. He is clearly Aspergers. We were having so many struggles (he was expelled from Montessori school after we pulled him from public school because public school was so difficult for him, socially), that I was honestly thrilled to get the diagnosis of autism.

There are so many shows on television now about high functioning autistic people that he does not see being autistic as a bad thing. I almost think there is more emphasis these days on the higher functioning autism than what I thought of as autism when I was growing up (the non-verbal, rocking back and forth, hand flapping types).

We have several tween friends with aspergers/autism and they exhibit none of the 'typical' traits that I associated with autism in the past.

Hihi Level 6 June 20, 2018

That's really interesting H. I know what you mean about being relieved to have a diagnosis. It puts things into perspective. I've just been diagnosed in my 60s. Adult women are only just being diagnosed because the traits are quite different from those of the men. I've also realised that without knowing it at the time, I found two former partners who're aspies.

@Abbelyne Yes it was a HUGE relief to get a diagnosis. And I'm convinced now that my ex husband has it, too, now that I understand it better.

As a child I thought I had signs of autism because I was so 'different' than other kids, and very socially dysfunctional. I probably am somewhere on the spectrum, although when my son was getting diagnosed, his neuropsychologist said I may have had more social anxiety disorder than aspergers. She did not see signs of aspergers in me during our conversation, which I found interesting. But yes, it does present different in girls/women, and I do think we learn better how to accommodate to society.

@Hihi Social anxiety disorder is one of the main symptoms of Asperger's in men and women. Few professionals, even psychiatrists, are familiar with the symptoms specific to women, and this is why women are only beginning to be diagnosed now. If you're interested in your own diagnosis Hihi, there's a very good questionnaire on YouTube. This is the one. Good luck with it.

1

I'm perfectly fine with it, but I've been a "lumper" for years. Not only am I Autistic, but my family and my clients are all over the place in functional ability. My father was arguably higher functioning than I am, I have an aunt who has spent her whole life in an institution, and I was part of helping recover my nephew from severe, vaccine-induced Autism.

I see a continuity among people on the spectrum. Trying to distinguish between Asperger's and so-called High Functioning Autism is like parsing the difference between teal and aqua. But many of us had severe delays when we were developing, which means we were excluded from an Asperger's diagnosis by the book, but still being given that as a diagnosis as teens or adults.

[news.nationalgeographic.com]

@Marmion,
Except that autoimmunity can be induced by vaccination, and at least some autism appears to be induced by autoimmunity. I've only been reading immunology for 17 years now...

@Marmion,
Now, however, we know that the immune system is linked to the brain and that the majority of Autistic people have crap immune systems. 1/4 of us have a Primary Immunodeficiency Disorder (and vaccines can KILL people with PID), and 80% of us have markers for autoimmunity.

Lucky me, I have two Primary Immunodeficiency Disorders and 3 Autoimmune Disorders. Life HURTS.

Oh, and I got measles twice from that stupid vaccine, and had seizures after almost every vaccination, whether it was killed or attenuated virus. I developed Ataxia within hours of my last vaccine, a DTaP some 16 years ago, and had to spend months relearning how to walk. And that's the same year my autoimmunity became symptomatic. And I caught Whooping Cough the following year anyway because the vaccine DIDN'T WORK.

I'm not getting any more vaccines, and my Immunologist, Rheumatologist, and Gastroenterologist are all on the same page as me. For that matter, there's a yearly conference in Europe on vaccine-induced autoimmunity, and they ALWAYS have research on Autism and Epilepsy presented there.

@TaraMarshall First off , by definition , a primary immunodeficiency disorder can not be caused by any external factor . Vaccines have not been shown to increase the risk of seizures , or ataxia . < [medicaldaily.com] , [vaccinesafety.edu] . But even after getting vaccinated immunity is not 100 % [healthtap.com] . And vaccines have not been connected in any way to the cause of autism , which is fundamentally a congenital condition . [health.wusf.usf.edu] . The only thing you posted that has any actual merit is on the possible link between the immune system and brain function [huffingtonpost.com] . So in conclusion , correlation does not necessarily equate to causation . P.S. If contagious pathogens can cause neuropathology , then I would hope all the more so that those whom can safely be immunized will do so . Because if herd immunity were to break down , people with a genetic predisposition to immunodeficiency would be effected by such an epidemic all the more so , especially since vaccinations would not be of any benefit to them . Now hopefully this helps to clear things up . And by the way , I find it rather rude the way that you responded to my posts with laughter . I take my online research seriously , and expect to be taken seriously in return .

3

I disagree with it completely. I’m not a doctor and haven’t researched why they felt it should be that way, but I have an older brother with severe autism. He’s 35 and can barely form a sentence unless it’s a quote he learned from a tv show. He only understands basic commands, usually only speaks in tv show quotes, and only watches old reruns of Sesame Street and Disney movies where he gets said quotes. So my issue with the whole spectrum idea is that I see people having full-on conversations, going to college, holding jobs, and able to take care of themselves for the most part, who also have autism. And all I can think is that’s not the same thing at all.

Yes, you're right, the spectrum is a very long one! Some people on what used to be the 'Asperger's' end feel offended by being called 'autistic'......... and many others like your brother who are struggling with multiple severe issues feel as though understanding and empathy for them is deflected when people who appear neurotypical have the same diagnosis as they do.

Btw Flex, welcome to the group and thanks for your response. I think that some of these dudes are a tad shy 😉

4

I think it confused people more. People know what I'm talking about when I say Aspergers but assume ASD means low-functioning autism only.

Yes, I think that a lot of people have continued to use the term 'Asperger's' for that reason.

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