Agnostic.com

Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Posts Tagged "disease" By TaraMarshall (4) Posts by anyone

Autoimmune Disorders and Rare
May 16, 2019May 2019

Posted by LadyAlyxandrea
My gp frustrates me sometimes. We work REALLY well together one on one, but when it comes to working together as a team on my issues that require working together with my entire healthcare team, he plugs his ears and goes "nananana let the diagnosing...
3 comments
Autoimmune Disorders and Rare
Apr 21, 2019Apr 2019

Posted by Swanky
Hello, I'm wondering if anyone has heard of an experimental therapy for essentially stalling auto-immune disease called Helminthic Therapy? It's basically ingesting live parasites (e.g., worms) to provoke an infection that requires the immune system ...
0 comments
Autoimmune Disorders and Rare
Feb 11, 2019Feb 2019

Posted by Lutherzme
Once free, drug for rare disease now being sold for $375K a year.
1 comment
Autoimmune Disorders and Rare
Feb 10, 2019Feb 2019

Posted by LadyAlyxandrea
Oh non-existent lord give me strength. My aunt who is an RN is now a naturopathic homeopathic pyramid scheme smuck. I posted about how this new medicine gave me RLS. Suddenly she's linking me to veggies that counter RLS and teas and essential oils....
2 comments
Autoimmune Disorders and Rare
Jan 18, 2019Jan 2019

Posted by Nunulady
The Science of Stress and How Our Emotions Affect Our Susceptibility to Burnout and Disease . I hope you can access this. It's an article from Brain Pickings.
1 comment
Autoimmune Disorders and Rare
Jan 17, 2019Jan 2019

Posted by LadyAlyxandrea
I'm starting to get irritated again. Though maybe I'm over reacting a bit due to having been awake 30 hours and my pain is like 50% worse today than ever. I finally got answers to a few of my issues (i.e., dual brachial plexus injuries, severe ...
0 comments
Autoimmune Disorders and Rare
Oct 4, 2018Oct 2018

Posted by ArtzyNerd
Initiation of Phase 2 Clinical Trial of Therapeutic Vaccine for Celiac Disease
1 comment
Autoimmune Disorders and Rare
Aug 24, 2018Aug 2018

Posted by LadyAlyxandrea
It's not fair that I have all the suffering of Crohn's disease and none of the weightloss. If I have to suffer I'd rather it have one silver lining
1 comment
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by BookDeath
I'm getting VERY tired tired of having to explain to each new doctor that no, I don't IBS (irritable bowel syndrome), bad enough though that is. I have collagenous colitis, which a form of INFLAMMATORY BOWEL DISEASE, akin to Crohn's and the like. It...
2 comments
Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by ColoradoSass
So happy to find this group. I have Hashimoto's disease and now I have some sort of "unidentified autoimmune disease". It acts like Celiacs but doesn't have the same genetic markers as Celiacs so they don't know what it is. The struggle is real. ...
4 comments
Autoimmune Disorders and Rare
Jul 3, 2018Jul 2018

Posted by Dingodog
So, how are you dealing with the social security, lack of income, insurance, copays and rent mortgage and so on. My wife was misdiagnosed with MS about 3 years ago even though she was asymptomatic. I just found out today that insurance for the with...
3 comments
Autoimmune Disorders and Rare
Jun 22, 2018Jun 2018

Posted by nutrition_nerd
How many of you have heard of Adverse Childhood Experiences? There was a study conducted by the CDC and Kaiser Permanente, about the effect of childhood trauma on the body. The research is astounding. People with >4 Adverse Childhood Experiences had ...
8 comments
Autoimmune Disorders and Rare
Jun 17, 2018Jun 2018

Posted by BookDeath
Hello, all. I have: Post-stroke syndrome (now rearing its ugly head); collagenous colitis (a form of inflammatory bowel disease); epilepsy; and osteoporosis, mild CP, AND an AVN. Do I fit this group?
4 comments
Autoimmune Disorders and Rare
Jun 16, 2018Jun 2018

Posted by JesseBoren
I have been diagnosed with a few rare diseases, some right some wrong. I've seen over 30 doctors in the last 18 years, apparently I'm a medical mystery. The first one I got was Trigeminal Neuralgia which lasted 6 months, thankfully I have had no ...
5 comments
Autoimmune Disorders and Rare
May 4, 2018May 2018

Posted by TampaHeathen
Hi, new member. I was diagnosed with Hashimoto's Thyroiditis on the same day as the Boston Marathon bombing (early reports were playing on the TV set in the waiting room as I was walking out). While primarily a disease common to females, one in ...
6 comments
Autoimmune Disorders and Rare
Apr 20, 2018Apr 2018

Posted by LadyAlyxandrea
Interesting development So for as long as I've had my pain, steroids of any kind have done...well...nothing. So a few weeks ago I developed pitiriusis rosea, a viral infection like chicken pox that covers your body in a massive amount of ringworm ...
5 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by vita
Anyone here battling chronic Lyme disease and coinfections? If so, how are you handling your presumably pro-science outlook with your denied-by-science diagnosis? (To anyone who might feel like telling me I don't have CLD, you should know that it ...
5 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by Corsaire
New to the site but am very interested in meeting like minded individuals.... my affliction is cushing's disease.
1 comment
Autoimmune Disorders and Rare
Mar 28, 2018Mar 2018

Posted by RobH86
Sad to hear about one of my favourite Magicians 'Dynamo'. He is very popular over here in the UK and I knew he had Chron's disease, but it didn't seem to affect him until now. I myself have Ulcerative Colitis (similar to Chron's) and have suffered ...
1 comment
Autoimmune Disorders and Rare
Mar 21, 2018Mar 2018

Posted by TaraMarshall
I have a regrettably list of diagnoses. Primary Immunodeficiency Disorders: Total IgA Deficiency and CVID. Autoimmune Disorders: Celiac Disease, Raynaud's Phenomena, and Lupus. Ehlers-Danlos Syndrome, IBS-C, Epilepsy, Autism, Depression, Anxiety, ...
2 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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