I have one of those unspecified autoimmune disorders that acts like RA but has its own unique features. I have a great rheumatologist and the way she explained it is "We only have names for a few hundred of these things. The important thing isn't to give your specific autoimmune disease a name, what's important is to figure out how to treat it."
I've been through quite a journey since then. It took a few years to figure out what combination of treatments works best for my unique condition. It wasn't easy but the alternative is to let my immune system continue to painfully attack my joints and internal organs. I'm doing far better now than I was before getting treatment. I have fewer flareups and far less pain. Try asking your doctor for a referral to a rheumatologist. I really had to fight with my spine doc for my referral and I am very grateful I did. I hope you find a good doctor and some answers soon.

Have them test you for Chronic Lyme if possible.

I need to be tested myself in fact. Not that there is any stellar treatment for it.

There's so many possible diagnosis for such things. And nothing really concrete to tackle that I know of. Hang in there. And make them listen to you about your quality of life.

I can relate to a lot of what you are saying. I was diagnosed with Lupus in 2000 and I have been pretty much in remission for about the past ten years. However, I don't have much joint pain now but, it is all muscular pain. (as most of us with chronic muscular pain, I got the additional diagnosis of Fibromyalgia) When I am asked what it feels like, the only way I can describe it is constantly feeling like I have just had an intense full body workout without the working out. Then people (who don't have an autoimmune disorder) say, 'I bet if you exercise, you would feel better'. Then when I actually attempt to workout, the pain is even worse. Then I hear, 'It will go away once you get into a routine'. OMG! It is so aggravating! They have no clue!

About two years ago my doctor tells me that I probably don't have Lupus but that I have Mixed Connective Tissue Disease. When I asked what it was, she basically said that it means I've got something autoimmune but, they can't figure out what type. When I was diagnosed, I was living in California and loved my Rheumatologist. I moved to New Mexico about ten years ago and I have yet to find a good rheumatologist where I live. Very minimal selection in the area and not even one in my town. My GP has been treating me but, she has a lot of knowledge of autoimmune disorders so, I have to make due. I also have Epstein-Barr virus, hypothryoid, Fibromyalgia and depression and anxiety.

Do you remember the last time you ever felt "normal"? I sure don't. I hope they figure out what is going on with you.