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Probably TMI - but I need to talk, and I know you guys won't give me the religion 'feedback' I've gotten about my disabled son in the past from others.

99% of the time, Collin does great with things. He's basically got his toileting down - but there are nights (or mornings) where he doesn't make it, and it feels like a Mr. Hankey attack in a South Park video Game.

Now, usually, I am perfectly able to handle this on my own; but I dislocated my shoulder the other day - and it's complicated things. Fortunately, my darling daughter is still home, and helped out more than I would have asked. So all is well

But, as most things do, this got me to thinking. And I'd never say this on a forum where she could see -

What and I going to do, when she goes out into the world, to live her life?

I refuse to bog her down in a life of helping care for her little brother, or for me. But, considering the years of solitude (and the lack of finances) - I can honestly tell you that I am scared.

My mom told me to date a woman so I'd have some help; I reminded her that she had raised me to not use people. And while I am not afraid of dating, it will be for companionship, and love - not to have them help me with my man-child.

It gets complicated really quick, doesn't it.

Any thoughts? I'd appreciate hearing from you.

DerekD 7 Apr 14
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27 comments (26 - 27)

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A challenge.. You seem to be doing a fine job, which requires endless kindness, dedication and fortitude.

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A little under the table arrangement with the welfare folks who live in your area. My wife, who was in a wheelchair, needed lunch and a potty break about noon. We paid a local welfare lady a couple of hundred a month to take care of this while I was a work. Win win for everbody, except maybe the IRS.

I did not have to worry about abusive caregivers because the wife was fully functional from the waist up and would not have allowed anyone to abuse her. It sounds like you won't have to worry about abusive caregivers because you will probably be there.

My neighbor's wife was also in a wheelchair and she probably weighed 250 pounds. I helped put her back in the chair a couple of times a year. The husband would call when he needed help. When she fell out of the chair the husband could not do the heavy lifting to get her back up.

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