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Understanding invisible illnesses

Slava3 7 July 1
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4 comments

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This is why I try to be as open as I can about my illnesses. Hiding things does me no favours.

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My doctors don't understand this. They love my readings and my blood work but for things they don't understand I'm offered the same old tests that we have ran before. I asked my primary if she actually thought there might be different results. That's insanity. These days I take more naps.
The nurse called me one time because they did not understand my tryglycerides. I explained it in a sentence. I told her I take their medicines and eat and drink what I want to. 🙂

@MrLizard My primary has done this with me but it is only lip service. I have no idea what they are putting in their computers as I talk to them. My primary is thrilled that my self administered vitamin therapy is working for me and the readings show it, but mostly they want to draw blood, do a smack, and just give you pills from that reading. I only have 4 meds to start with and one is for gout. I'm seldom concerned with the after meals pill because I do not have GERD or heartburn. I can eat anything that I want.

@MrLizard I was diagnosed with the somewhat rare Hyperparatyroid Tumor causing elevated blood calcium levels,resulting in Kidney stones,two operations at Govt.expense(I was in the Air Force at the time) with only one flare up(supposedly due to drinking lot's of Cola drinks), no major problems

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I have a few; fibromyalgia probably gives others the most problem. They don’t get it that a nap won’t cure the fatigue!

They have a similar reaction to narcolepsy.

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Yes, but we can only respond to what we see and often friends and family are good at hiding their pain. I can only hope that by being an open and welcoming person I would encourage friends to unburden.

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