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I'm feeling proud and frustrated. Yesterday, I spent about 40 minutes walking around a new exhibit at the Science Centre before pain forced me to sit.Then, I took a quick look at the other 2 floors, although I skipped about 3 exhibits. Then I watched the new IMAX movie. Last year, I could not have walked from the entrance to the first exhibit.

I also did three shopping errands before going home and falling asleep. So I feel proud of accomplishing so much.

On the other hand, at one point I felt as if my entire body was a flashing neon sign broadcasting one word - "PAIN". So I feel frustrated that the healing process is taking so much time and effort.

I want my life back.

pixiedust 8 May 21
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5 comments

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1

I can relate. I deal with ongoing physical limitations due to neuropathy and fatigue from chemo treatment last year for Hodgkin's Lymphoma (in remission since August). Some days I amaze myself on what I can accomplish; other days it's enough for me just to be able to get out of bed. I applaud myself for every step, but at the same time I consistently feel like it's never enough, especially when there's so much more I want to do but can't because of my limitations. It frustrates me to no end. Every. Day.

I hear your frustration!

1

I know how you feel. You won't be back to full force until you can ride that unicycle down and back up those four flights of stars. You go girl!

Now that's a goal!

2

Not sure what happened but way to go lady! Not sure if you will "get your life back" but it sure sounds like you are on the right track for healing and should be very proud of pushing yourself through the pain. Try to focus on progress not perfection because you are doing great.

I like that phrase "progress not perfection". It might become my mantra.

@pixiedust Awesome! Glad it helped!

2

It will come, just patience !

2

I know what you mean. I was able to get back to walking/hiking today after a heat exhaustion episode that sidelined me for days.

Oh, I hope you're feeling much better. Heat exhaustion can be debilitating.

@pixiedust Thanks!

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