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Amputee Identity Disorder

Anyone have thoughts on people who believe they should have been born without a limb? And even go to the extent of having them amputated? I completely "get" transgender people but for some reason I can't wrap my head around this.

Marcie1974 8 Feb 28
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There's an important factor when it comes to a mental health diagnosis, and it revolves around whether or not the condition causes the subject distress or impairs their ability to function. Being gay or transgender ceased to meet these criteria when folks realised that gay and trans people can be both happy and fully functional, as long as you allow them to nurture their identity rather than expecting them to repress it. Gender dysphoria is still a thing, but it's the unhappiness created by society's expectations of us (and our own expectations of ourselves) to put the whole thing back in the box and just behave in line with accepted societal norms for our birth sex. It isn't being unhappy with your gender identity, it's being unhappy with the way that society treats you if you dare to express it. Someone who can't be happy unless they somehow physically disable themselves has a dilemma. They have to either sacrifice their happiness or their ability to function fully (physically) by self-harming to create the disability. Therefore they still meet the critera of causing themselves either distress or (physical) dysfunction. Therefore it still warrants a mental illness diagnosis. It's like the difference between a fetish and a fetishistic disorder. The former is someone who's turned on by something unusual, and isn't considered a mental health problem. The latter is someone who can only become aroused if that unusual thing is present, and can't function sexually without it. That is a mental health problem. There, I think, is the distinction that I would make between being transgender and being transabled. That's why one is perfectly easy to accept, while the other is much more challenging.

Thanks for that great insight! Really makes sense.

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Right up there with folks who put themselves in wheelchairs who don't need them. But they feel they belong in them. Some have sought out having their spinal cords severed.
(Puzzles me to pieces?).

Some sort of Dysmorphic you'd think - but why?

I totally get transgendered - I have niece who is. But I don't 'get' these folks. And I've heard them explain it.

Glad it’s not just me being judgy

@Marcie1974 No wondering why people do something isn't judgy - especially as you wonder if someone has an answer. 😉

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Its simply because you don't feel it. I can't get my head around someone who skins animals alive or fucks kids or cuts peoples heads off for a magic man in the sky. it is a quick way to lose weight.

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I used to be a psychologist, There is a disorder in which people believe they have an imagined flaw when nothing is wrong with them. There are some people that think they are too ugly to even be seen by others, and nothing is wrong with them at all, it is a mental problem. Maybe the condition you describe in the same family. It also gets called Body Integrity Identity Disorder. It is not clear to scientist whether it is a mental disorder, brain disorder or other. It starts when the person is young, and even if a limb is removed, "they might not feel better" They usually know someone that is an amputee. The medical community does not know much about this condition. [en.wikipedia.org]

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Part of my disease causes me to lose perception of where my limbs are in relation to the world. Many times I forget that I have a right leg, because my nerves don't register it is there.

Now this is not the same as that mentsl disorder, but it's similar in that I think there's a proprioception problem in that their brain doesn't fully grasp that they have that limb and it makes them feel wrong TO have it. This is my theory at least.

Interesting, thanks for your perspective. I had not thought of that...

You have EDS correct? My niece's wife has this and it's been a real struggle to find anyone who treats this competently.
Have you found good treatment?

Also I have neuropathy. And it's really weird the days I can't feel my feet - or they feel encased in wax. Not so good the days they feel like they're being cut either.

Our brains are mysterious places (Still).

@RavenCT yeah it's been a very difficult road to finding out what it was and how to treat it. I found the EDS society online offers a lot of help and support. It's still so rare that not many physicians even know about it, and in my state there are no geneticists that test adults, so that's been ridiculous because it needs to have genetic testing. I see a pain specialist who is treating the nerve pain and trying to help, but I also am going to see another neurologist to treat the proprioception disorder and dystonia now that I have an idea of what is going on (the 5 neurosurgeons didn't have a clue, before I got diagnosed, what was going on)

It's really a challenging disorder that has such weird problems. I am quickly losing my fine motor skills because I think my brain is just giving up trying to find my fingers and hands lol

@LadyAlyxandrea

So it's not "Just her". I mean we've all been behind her 100 percent - she finally found a pain specialist to treat her - but not a geneticist yet. I think in a few months I'll try to give her a push again. She seems to need it - and I get it - I have chronic pain too.

She's had a lot of dislocations. I can't remember which version she has? But pain all of the time. (She also can bend her fingers all the way back).

We couldn't get her to stick with the Society online - I think she was just too discouraged at the time.

@RavenCT it can be so hard. Let her know that she's not alone and that I very much understand the feelings of helpless and hopelessness and the exhaustion of trying to find someone who actually knows anything. I dislocate almost daily in my knee caps, my ankles subluxation and shoulder dislocates. I also suspect my vertebrae frequently shift and wobble like loose teeth but have not been able to catch it on film. If her pain specialist isn't helping I can recommend an amazing one in Nebraska that specializes in unusual and rare pain. I drive every month over 250 miles one way to see him, but he's the only one so far that has actually helped at all.

@LadyAlyxandrea I will tell her that.

The dislocations are just - awful. I've dislocated my shoulder a few times - and the pain afterwards is just terrible.

@RavenCT yeah they are worse than breaking a bone. I found wearing supports help, but not with my shoulders..

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It is a disorder which has been documented fairly extensively. Unlike transgender, which I don't see as illness, this I do. It draws others--medical professionals--into it.

That's kind of what I was wondering..."disorder" vs. nature making a gender mistake

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I have never heard of this but face it, humans can be absurd (at least according to me).

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