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Any other fibromyalgia sufferers here? I'm wondering if you also notice a correlation between the barometric pressure and your pain levels. I find that my pain increases when the barometer is falling. On the plus side, my weather predictions are more accurate than the meteorologists'.

TheoryNumber3 8 Jan 28
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4

I was diagnosed with fibromyalgia in 1994. It was right after I got divorced. I know how painful it is.

Took five years to get over it. Stretching, Tai Chi, yoga, meditation, hiking, walking, running and weight lifting.

I am happy to say I don't have fibromyalgia anymore.

I think doctors diagnose women with fibromyalgia when they can't figure out what is wrong.

You're lucky. It's a difficult condition to live with. I've improved my condition through a healthier diet and less stress, but it's still a huge impediment, particularly in changeable weather

@TheoryNumber3

I went to the National Fibromyalgia Foundation conference in 1996 in Portland, Oregon. I could sense enormous pain and depression in the room.

So I looked around the room for fit, healthy women like me. Six of those women lived near me. We became a support group and shared what worked for us.

I found a Tai Chi teacher. Coordinated classes. Tai Chi helped me tremendously. It's a moving meditation.

@LiterateHiker Yes,I agree. The support groups are very helpful. We have various groups in the Chgo area, but like you, I found them very depressing. When my fibro was at its worst, I did Qi Gong classes on a regular basis. It's also very beneficial for pain management. I really should start doing that again. It's good for mind and body.

3

Absolutely, and same. Although they can't explain it, I think it's become commonly accepted except by the most conservative of physicians. The cold in general hurts me due to a couple of autoimmune issues, as well as sudden drops in temperature. Ideally I'd live somewhere that it never drops below 60 but oh well.

Ii agree. I too have fewer problems during the warmer months.

4

A HUGE help for me has been avoiding aspartame...just amazing what even 2 swallows of a Diet Coke can trigger!

Agreed! All artificially modified sweeteners, actually, like Splenda.

Yes... I cut out all of that several years ago. I switched to a plant based diet, cut out sugar and white flour too. I use Stevia Liquid exclusively as a sweetener. The Stevia sold in most stores has additional ingredients that can be harmful. I don't have nearly as much pain, but I still have the effects of weather changes

4

There have been a number of studies on the topic, but they are quoted as having "little or no clinical relevance" so the findings are considered anecdotal. But for me, when the pressure drops I feel an increase in pain as well as a general tightness... as if I'm wearing a full body compression suit.

I'm not sure why they can't replicate the results in studies, other than perhaps the wide range of symptoms in fibromyalgia patients making it difficult to pin down. Arthritis sufferers have complained of the same thing for over 100 years and no one debates them on it. I often think it's because of the bias of people not "believing" in fibromyalgia, something I've lived with for over 40 years now.

@Lauren Maybe it's because it's not something they can observe and measure. With arthritis, they can see the swelling and decreased range of motion. With fibromyalgia, the diagnosis is generally based on the testimony of the patient, which is anecdotal and not really clinically measurable, at least to my knowledge.

4

Yes, I do.

6

This is a very common, long-standing complaint with autoimmune sufferers and the elderly. Especially women. Depressurizing has physiological affects. Doctors suck with acknowledging these things, but the Fibro community on reddit talks about it often. I too can feel a low front coming in ahead of time by how high my heart rate will spike and my blood pressure drops. Every single time.

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